In-Person NCI Survey

The National Core Indicators (NCI) program has released the NCI Intellectual and Developmental Disability In-Person Survey (IPS) National Report for the year 2021-2022.

The comprehensive report is based on data collected by 27 states, including New York, from 13,559 adults receiving long-term services and supports from their state Developmental Disabilities (DD) service systems.

The Human Services Research Institute sent out a release that summarizes some of the findings, including:

  • Employment: Only 16% of the overall surveyed individuals have a paid community job, “indicating significant room for improvement in creating inclusive employment opportunities.”
  • Workforce and access to services: Among those surveyed, 90% report their staff come and leave when they are supposed to, and 86% report their staff do things the way they want them done. On average, 40% of those surveyed reported that their paid staff change too often.
  • Quality Outcomes: 78% report they are able to get places when they want to do something outside their home, and 11% report that they often feel lonely. Further, when people in their house go somewhere, less than half (45%) are able to stay home.

State-by-State Breakdown

A breakdown by state of the study’s “chapters” — which include Choice and Decision-Making, Health, Rights and Respect, Self Direction — can be found here.

For example, in Employment, the average of surveyed individuals in New York with paid community jobs was 11%, with the largest percentage (25%) of those jobs being in food prep and food service. (The study gets pretty detailed so, for example, you can also find things such as what percentage of those surveyed has community employment as a goal in their service plan.)

The NCI-IDD program is a collaborative effort between state DD systems, Human Services Research Institute (HSRI), the National Association of State Directors of Developmental Disabilities Services (NASDDDS), and people with disabilities and their families.

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